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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
A Belated Birthday Party
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Posted by
Marci Scher
Spinraza - A Treatment for Spinal Muscular Atrophy
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Posted by
Marci Scher
A Mother's Chorus: Grieving a Child on Mother's Day
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Posted by
Marci Scher
A Letter To My Daughter
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