Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
JScreen - Pontocerebellar Hypoplasia Type 1A
- Get link
- X
- Other Apps
Posted by
Marci Scher
We Are the Sisterhood of Mothers With Medically Fragile Children
- Get link
- X
- Other Apps
Posted by
Marci Scher
My Message as a Researcher to Anyone With a Rare or Undiagnosed Disease
- Get link
- X
- Other Apps
Posted by
Marci Scher
I Had My Own Notion of Grief
- Get link
- X
- Other Apps
Posted by
Marci Scher
15 Months - Shalva
- Get link
- X
- Other Apps
Posted by
Marci Scher
Isaac's Finishing Up Hanukkah
- Get link
- X
- Other Apps
Posted by
Marci Scher
As We Approach 2018; Day 472
- Get link
- X
- Other Apps
Posted by
Marci Scher
10 Things That Make Families Happier
- Get link
- X
- Other Apps