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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Another Year...6 Years....3 Years
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Marci Scher
Is It Over Yet?
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Marci Scher
Becca's Adventures
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Marci Scher
A Special Thank You
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Marci Scher
A Special Visit
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