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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from December, 2014
Posted by
Marci Scher
Dear Sibling to a Child With Special Needs, Let Me Tell You Why You're Amazing
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Posted by
Marci Scher
Toilet Paper oh Toilet Paper
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Marci Scher
Going for a Ride
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Marci Scher
What is This Big Black Box Hanging Around?
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Marci Scher
Who Likes Spiderman More?
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Marci Scher
Dreidel, Dreidel, Dreidel
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Marci Scher
Hanging Around As Part of the Family
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Marci Scher
Isaac Was A Little Hungry
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Marci Scher
What's It All ABOUT?
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Marci Scher
This Family Is Crazy...
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Marci Scher
Hanging Around For The Night
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Marci Scher
Becca's 6th Grade Winter Concert
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Marci Scher
Isaac with a Trache
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Marci Scher
The Maccabee on the Mantel
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Marci Scher
Asks Some of the Craziest Things
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Marci Scher
Losing Part of Ourselves
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Marci Scher
Next Steps and Decisions
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