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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from January, 2015
Posted by
Marci Scher
Album from FeeBee Photography
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Posted by
Marci Scher
Living with a Rare Disease - DAY-BY-DAY, HAND-IN-HAND
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Posted by
Marci Scher
A Proud Becca Moment
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Posted by
Marci Scher
12 Things I Wish I’d Known About Being a Special Needs Parent
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Posted by
Marci Scher
2 Years and Happy New Year
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