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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from July, 2020
Posted by
Marci Scher
Hope 365: Day 20 of Daily Meditations of the Grieving Heart
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Posted by
Marci Scher
Hope 365: Day 21 of Daily Meditations for the Grieving Heart
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Posted by
Marci Scher
Fuck Rare Disease
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