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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
Things You Should Know About A Special Needs Family
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Marci Scher
Delay Update from Wednesday, January 23 into Thursday, January 24
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Marci Scher
The Feelings of Helplessness by Daddy
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Marci Scher
Tuesday, January 22, 2013
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Marci Scher
Monday, January 21, 2013
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Marci Scher
Two weeks....January 20, 2013
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Marci Scher
Friday, January 18, 2013
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Marci Scher
AND IT'S OUT....January 17, 2013
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Marci Scher
6:00 chest xray, January 16, 2013
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