Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
The Maccabee on the Mantel
- Get link
- X
- Other Apps
Posted by
Marci Scher
Asks Some of the Craziest Things
- Get link
- X
- Other Apps
Posted by
Marci Scher
Losing Part of Ourselves
- Get link
- X
- Other Apps
Posted by
Marci Scher
Next Steps and Decisions
- Get link
- X
- Other Apps
Posted by
Marci Scher
The Invisible String --- By: Patrice Karst
- Get link
- X
- Other Apps
Posted by
Marci Scher
As Thanksgiving Approaches
- Get link
- X
- Other Apps