Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Living with a Rare Disease - DAY-BY-DAY, HAND-IN-HAND
- Get link
- X
- Other Apps
Posted by
Marci Scher
A Proud Becca Moment
- Get link
- X
- Other Apps
Posted by
Marci Scher
12 Things I Wish I’d Known About Being a Special Needs Parent
- Get link
- X
- Other Apps
Posted by
Marci Scher
2 Years and Happy New Year
- Get link
- X
- Other Apps
Posted by
Marci Scher
Dear Sibling to a Child With Special Needs, Let Me Tell You Why You're Amazing
- Get link
- X
- Other Apps