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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
World RARE Disease Day 2016
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Marci Scher
Words in Your Heart that You Can't Utter
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Marci Scher
Welcome to Our Mischief Child
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Marci Scher
Communication and Swallowing
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Marci Scher
24 Things People With Rare Diseases Wish Others Understood
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Marci Scher
A Huge Thank You Chai Lifeline
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