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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Hope 365: Day 20 of Daily Meditations of the Grieving Heart
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Marci Scher
Hope 365: Day 21 of Daily Meditations for the Grieving Heart
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Marci Scher
Fuck Rare Disease
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Marci Scher
Finding Comfort in Places You Question
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Marci Scher
Grateful for... Four Years
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Marci Scher
Rare Disease Day 2020 - Parents, Patients, Doctors
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Marci Scher
White Coat Ceremony - Franklin High School Class of 2021 Project Lead the Way Biomedical Program
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Marci Scher
It Is Just Another Day...For me...
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Marci Scher
A Letter To My Children As We Enter A New Decade
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Marci Scher
Higher Power and Kintsugi
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