Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Looking Good
- Get link
- Other Apps
Posted by
Marci Scher
Needs A Haircut
- Get link
- Other Apps
Posted by
Marci Scher
Spinraza - A Treatment for Spinal Muscular Atrophy
- Get link
- Other Apps
Posted by
Marci Scher
Throw Back
- Get link
- Other Apps
Posted by
Marci Scher
A Mother's Chorus: Grieving a Child on Mother's Day
- Get link
- Other Apps
Posted by
Marci Scher
A Letter To My Daughter
- Get link
- Other Apps
Posted by
Marci Scher
Camp Me Too
- Get link
- Other Apps
Posted by
Marci Scher
An Old Photo
- Get link
- Other Apps
Posted by
Marci Scher
Gilchrist Pediatric Service of Remembrance
- Get link
- Other Apps
Posted by
Marci Scher
Happy 14th Birthday and 1st Angel Birthday
- Get link
- Other Apps
Posted by
Marci Scher
Spring Break
- Get link
- Other Apps
Posted by
Marci Scher
'7 Things I Learned Since the Loss of My Child' By Angela Miller
- Get link
- Other Apps
Posted by
Marci Scher
Why Bad Things DON'T Happen to Good People
- Get link
- Other Apps
Posted by
Marci Scher
THE CHINA TEACUP
- Get link
- Other Apps
Posted by
Marci Scher
A Memorial Prayer for Yom Kippur by Rabbi Naomi Levy
- Get link
- Other Apps
Posted by
Marci Scher
Sly Eyes and Smile
- Get link
- Other Apps
Posted by
Marci Scher
Person Asks Online For Advice On How To Deal With Grief....The Reply Is Incredible
- Get link
- Other Apps
Posted by
Marci Scher
March 15, 2017 - 6 Months
- Get link
- Other Apps
Posted by
Marci Scher
Memorial Quilt
- Get link
- Other Apps
Posted by
Marci Scher
18 Things People Need to Learn on World Rare Disease Day - From The Mighty
- Get link
- Other Apps
Posted by
Marci Scher
What It's Like Having a Child With a Rare Disease by Michelle Haxby from The Mighty
- Get link
- Other Apps