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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Spinraza - A Treatment for Spinal Muscular Atrophy
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Marci Scher
A Mother's Chorus: Grieving a Child on Mother's Day
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Marci Scher
A Letter To My Daughter
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Marci Scher
Gilchrist Pediatric Service of Remembrance
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Marci Scher
Happy 14th Birthday and 1st Angel Birthday
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Marci Scher
'7 Things I Learned Since the Loss of My Child' By Angela Miller
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Marci Scher
Why Bad Things DON'T Happen to Good People
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Marci Scher
A Memorial Prayer for Yom Kippur by Rabbi Naomi Levy
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Marci Scher
Sly Eyes and Smile
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Marci Scher
Person Asks Online For Advice On How To Deal With Grief....The Reply Is Incredible
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Marci Scher
March 15, 2017 - 6 Months
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Marci Scher
18 Things People Need to Learn on World Rare Disease Day - From The Mighty
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Marci Scher
What It's Like Having a Child With a Rare Disease by Michelle Haxby from The Mighty
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