Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Hope 365: Day 20 of Daily Meditations of the Grieving Heart
- Get link
- X
- Other Apps
Posted by
Marci Scher
Hope 365: Day 21 of Daily Meditations for the Grieving Heart
- Get link
- X
- Other Apps
Posted by
Marci Scher
Fuck Rare Disease
- Get link
- X
- Other Apps
Posted by
Marci Scher
Finding Comfort in Places You Question
- Get link
- X
- Other Apps
Posted by
Marci Scher
Grateful for... Four Years
- Get link
- X
- Other Apps
Posted by
Marci Scher
Rare Disease Day 2020 - Parents, Patients, Doctors
- Get link
- X
- Other Apps