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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Weekend of February 23rd
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Marci Scher
Friday, February 22, 2012
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Marci Scher
World Rare Disease Day
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Marci Scher
President Weekend News
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Marci Scher
First Few Day at Mt. Washington
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Marci Scher
In With the New, Out With the Old
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Marci Scher
10th floor, he has arrived
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Marci Scher
Holding Steady and Moving Forward
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Marci Scher
What a Difference a Week Makes or Thereabouts (By Brian)
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