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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Extubated and more; January 13, 2013
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Posted by
Marci Scher
And we are out....January 11, 2013
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Posted by
Marci Scher
Update, January 10, 2013
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Marci Scher
January 9, 2013
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Marci Scher
6:00 X-Ray, January 8, 2013
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Posted by
Marci Scher
PICU - January 7-8, 2013
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Posted by
Marci Scher
Hopkins Day Two - January 7, 2013
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