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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
6:00 chest xray, January 16, 2013
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Posted by
Marci Scher
Night and Today, Third Time is a Charm; January 16 or Day 11
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Posted by
Marci Scher
Another Bron and CT scan
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Posted by
Marci Scher
Monday, January 14, 2013 - Day 9
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Posted by
Marci Scher
Extubated and more; January 13, 2013
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Marci Scher
And we are out....January 11, 2013
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Posted by
Marci Scher
Update, January 10, 2013
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