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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from 2012
Posted by
Marci Scher
Jewish Times Article....Awareness Is Key
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Posted by
Marci Scher
Forward, Backwards and Tough Decisions
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Posted by
Marci Scher
It's Almost Here.....
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Posted by
Marci Scher
New "Normal" Again
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Posted by
Marci Scher
Benefit Thirty-One and Slumber Party for Ian
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Posted by
Marci Scher
One of the best feelings!
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Posted by
Marci Scher
The Seven Habits of Highly Effective People Applied to Special Need Parents
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Posted by
Marci Scher
Week of MD appointments....
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Posted by
Marci Scher
Casey Cares and The Ravens
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Posted by
Marci Scher
Bath Chair Update
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Posted by
Marci Scher
MY SPECIAL DAUGHTER (AND HER SPECIAL BROTHER)
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Posted by
Marci Scher
Some recent pictures ...
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Posted by
Marci Scher
Petition to help get Ian's Bath Chair covered
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Posted by
Marci Scher
A New Normal...Diagnosis
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Posted by
Marci Scher
Camp Oest 7/11 - 7/14 2012
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Posted by
Marci Scher
NEW PURCHASE
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Posted by
Marci Scher
January 8, 2012
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