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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from September, 2016
Posted by
Marci Scher
I Miss...2 weeks today
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Posted by
Marci Scher
Wednesday, September 14th
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Posted by
Marci Scher
New Normal or Still Recovering?
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Posted by
Marci Scher
GIVING BACK TO OUR LIFELINE
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