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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
Update, January 10, 2013
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Marci Scher
6:00 X-Ray, January 8, 2013
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Marci Scher
PICU - January 7-8, 2013
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Marci Scher
Hopkins Day Two - January 7, 2013
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Marci Scher
Back At Hopkins January 6, 2013
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Marci Scher
Jewish Times Article....Awareness Is Key
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Marci Scher
Forward, Backwards and Tough Decisions
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Marci Scher
It's Almost Here.....
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Marci Scher
New "Normal" Again
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Marci Scher
Benefit Thirty-One and Slumber Party for Ian
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