Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Extubated and more; January 13, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
And we are out....January 11, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Update, January 10, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
6:00 X-Ray, January 8, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
PICU - January 7-8, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Hopkins Day Two - January 7, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Back At Hopkins January 6, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Jewish Times Article....Awareness Is Key
- Get link
- X
- Other Apps
Posted by
Marci Scher
Forward, Backwards and Tough Decisions
- Get link
- X
- Other Apps
Posted by
Marci Scher
It's Almost Here.....
- Get link
- X
- Other Apps