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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Understands More Then We Think
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Marci Scher
Another tough decision - Back Surgery
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Marci Scher
Our Journey...Happy 16th Anniversary
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Marci Scher
My Little Boo - Brian
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Marci Scher
Remember the fathers of sick children
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Marci Scher
Remember the mothers of sick children
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Marci Scher
Family Game Night - Brian
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Marci Scher
Thanks Lego - Brian
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