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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Rare Disease Day 2015
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Marci Scher
Gilchrist Hotel and Respite
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Marci Scher
Pulmonary Appointment and Back Surgery
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Marci Scher
Gilchrist Meeting and Decisions
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Marci Scher
Special Needs Parents
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Marci Scher
Girl Scouts and Gilchrist Kids
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Marci Scher
Girls and Boys Weekend
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Marci Scher
Feeding Update
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Marci Scher
A Night of Appreciation
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