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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
RIP Dr. Derick Sheppard, Grey's Anatomy
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Marci Scher
Happy 12th Birthday and How We Are Doing
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Marci Scher
When Your Medically Complex Child is Never Really 'Out Of The Woods'
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Marci Scher
The Birthday Presents
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Marci Scher
Monday Night April 6th, Plan for Tuesday April 7
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Posted by
Marci Scher
Sunday Niight and Plan for Monday (April 5th and 6th)
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