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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Emotions Are Up and Down for All of Us
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Posted by
Marci Scher
Happy 12 1/2 Birthday
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Marci Scher
PAIN - MY FEET ARE ON FIRE
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Posted by
Marci Scher
More From The Grief Club
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Posted by
Marci Scher
Wheelchair Clinic and Follow-up on Shoulder
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Posted by
Marci Scher
Microcephaly Awareness Day...I Love Someone with Microcephaly
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