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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from May, 2015
Posted by
Marci Scher
Recovering From the Close Call
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Posted by
Marci Scher
Imperfectly Perfect Weekend
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Posted by
Marci Scher
Rough Weekend....Life Goes On
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Posted by
Marci Scher
Causes of a Headache - by Brian
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Posted by
Marci Scher
Follow Up With Spinal Fusion
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Posted by
Marci Scher
Thank You Universe
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