Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Bereaved Parents Awareness Month
- Get link
- X
- Other Apps
Posted by
Marci Scher
B'Nai Mitzvah - May 8, 2016
- Get link
- X
- Other Apps
Posted by
Marci Scher
Grateful for Insurance
- Get link
- X
- Other Apps
Posted by
Marci Scher
Welcome to Holland (Part 2) by Anonymous
- Get link
- X
- Other Apps
Posted by
Marci Scher
Welcome to Holland by Emily Perl Kingsley
- Get link
- X
- Other Apps
Posted by
Marci Scher
A Full Weekend of Chai Lifeline
- Get link
- X
- Other Apps
Posted by
Marci Scher
Out and About With Friends
- Get link
- X
- Other Apps
Posted by
Marci Scher
World RARE Disease Day 2016
- Get link
- X
- Other Apps
Posted by
Marci Scher
Words in Your Heart that You Can't Utter
- Get link
- X
- Other Apps
Posted by
Marci Scher
Welcome to Our Mischief Child
- Get link
- X
- Other Apps
Posted by
Marci Scher
Communication and Swallowing
- Get link
- X
- Other Apps