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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
The Huffington Post
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Marci Scher
Thanks To The Men In Blue (Brian)
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Marci Scher
Happy Father's Day
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Marci Scher
All About A Girl
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A Shift in Perspective
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Marci Scher
The Lonsmen Ride
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Marci Scher
Happy Mother's Day
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Marci Scher
Moving Along...Behaving!
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Marci Scher
Heading to Hopkins
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Marci Scher
Five Days of Birthday Celebration
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Marci Scher
Happy 11th birthday
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Marci Scher
Rough Nights - Possible "New" Normal
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Marci Scher
New or Old SMA Family....
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Marci Scher
JUST ANOTHER DAY AS A CHILD LIFE SPECIALIST
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Marci Scher
The Ugly and The Beautiful
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Marci Scher
RARE DISEASE DAY UPDATE
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