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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from January, 2013
Posted by
Marci Scher
January 30 - 31, 2013
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Marci Scher
Tuesday, January 29, 2013
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Marci Scher
Monday, January 28, 2013
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Saturday, January 26, 2013
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Friday, January 25, 2013
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Marci Scher
Thursday, January 24, 2013
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Marci Scher
Things You Should Know About A Special Needs Family
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Marci Scher
Delay Update from Wednesday, January 23 into Thursday, January 24
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Marci Scher
The Feelings of Helplessness by Daddy
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Marci Scher
Tuesday, January 22, 2013
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Marci Scher
Monday, January 21, 2013
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Marci Scher
Two weeks....January 20, 2013
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Marci Scher
Friday, January 18, 2013
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Marci Scher
AND IT'S OUT....January 17, 2013
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Marci Scher
6:00 chest xray, January 16, 2013
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Marci Scher
Night and Today, Third Time is a Charm; January 16 or Day 11
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Marci Scher
Another Bron and CT scan
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Marci Scher
Monday, January 14, 2013 - Day 9
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Marci Scher
Extubated and more; January 13, 2013
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Marci Scher
And we are out....January 11, 2013
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Marci Scher
Update, January 10, 2013
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Marci Scher
6:00 X-Ray, January 8, 2013
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Marci Scher
PICU - January 7-8, 2013
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Marci Scher
Hopkins Day Two - January 7, 2013
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Marci Scher
Back At Hopkins January 6, 2013
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