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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Posted by
Marci Scher
Emotions Are Up and Down for All of Us
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Marci Scher
Happy 12 1/2 Birthday
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Marci Scher
Pain Crisis Update
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Marci Scher
PAIN - MY FEET ARE ON FIRE
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Marci Scher
More From The Grief Club
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Marci Scher
Wheelchair Clinic and Follow-up on Shoulder
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Marci Scher
Microcephaly Awareness Day...I Love Someone with Microcephaly
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Marci Scher
As Fragile As China
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Marci Scher
Things Happen in 3's
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Marci Scher
Just Another Day
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Marci Scher
UPDATE - Rock ‘N’ Roll - Something a Little Crazy for Me
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Marci Scher
How to Survive Being Friends With a Special Needs Parent
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Marci Scher
Rock ‘N’ Roll - Something a Little Crazy for Me
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Marci Scher
All Together Again
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Marci Scher
Missing These Faces
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Marci Scher
Signed, Sealed and Delivered
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Marci Scher
The Most Wonderful Place on Earth
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Marci Scher
SMA and PCH - A rough weekend
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Marci Scher
One Down - One to Go
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Marci Scher
Follow - MD Appointments
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Marci Scher
The Bob Marley Quote I'd Go Back and Tell Myself When My Daughter Was Diagnosed....by Terra Atkinson
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Marci Scher
Another Year...6 Years....3 Years
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Marci Scher
Is It Over Yet?
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Marci Scher
Becca's Adventures
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Marci Scher
A Special Thank You
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