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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
RAISE AND JOIN HANDS...JEANS FOR GENES
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Marci Scher
Care About Rare - It's Just About Life
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Marci Scher
Handprints Across America
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Marci Scher
Rare Diseases - February 28th
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Marci Scher
Dates - Do They Mean Something?
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Marci Scher
The Gift of Life
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Marci Scher
Looking back...
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Marci Scher
It's About Becca 2
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Marci Scher
Kids Are Amazing – Especially Mine
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Marci Scher
B4sma Productions: Your Eyes
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Marci Scher
Realization - A Call Out to the Villiage
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Marci Scher
Friday, December 27 - Meeting Spider-Man and Friends (Again)
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Marci Scher
The Rest Of April - This is a post from April 2013
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Marci Scher
Sleep Study Update / Back to School
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Marci Scher
Thursday, December 26
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Marci Scher
Wednesday, December 25
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Marci Scher
Tuesday, December 24
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Marci Scher
And We Are Off...Walt Disney World - Saturday - Sunday, December 21 - 22
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