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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
24 Things People With Rare Diseases Wish Others Understood
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Marci Scher
Touch My Heart
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Marci Scher
A Huge Thank You Chai Lifeline
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Marci Scher
Bling, Bling, Bling
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Marci Scher
A Fishing We Will Go
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Marci Scher
I WANT COFFEE
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Marci Scher
Anyone Have the Time?
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Marci Scher
Isaac's Back
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Marci Scher
Joey 1998 - 2015
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Marci Scher
Mystery on Camp Lookout Mountain by: Ian Scher
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Marci Scher
Rock 'N' Roll Las Vegas Team Lifeline
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Marci Scher
The Ultimate Gift by Jim Stovall
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Marci Scher
Pre-B'Nei Mitzvah Photos
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Marci Scher
Joey and her Walkabout
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Marci Scher
Heaven over Hospital
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Marci Scher
Emotions Are Up and Down for All of Us
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Marci Scher
Happy 12 1/2 Birthday
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Marci Scher
Pain Crisis Update
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Marci Scher
PAIN - MY FEET ARE ON FIRE
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Marci Scher
More From The Grief Club
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Marci Scher
Wheelchair Clinic and Follow-up on Shoulder
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Marci Scher
Microcephaly Awareness Day...I Love Someone with Microcephaly
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Marci Scher
As Fragile As China
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Marci Scher
Things Happen in 3's
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Marci Scher
Just Another Day
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Marci Scher
UPDATE - Rock ‘N’ Roll - Something a Little Crazy for Me
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Marci Scher
How to Survive Being Friends With a Special Needs Parent
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Marci Scher
Rock ‘N’ Roll - Something a Little Crazy for Me
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