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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
President Weekend News
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Marci Scher
First Few Day at Mt. Washington
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In With the New, Out With the Old
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Transfer...
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Weekend Update
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10th floor, he has arrived
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Holding Steady and Moving Forward
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What a Difference a Week Makes or Thereabouts (By Brian)
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Super Bowl Sunday.. February 3, 2013
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Ian and his 2 seconds of fame
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Trach Surgery and Mickey Tube
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January 30 - 31, 2013
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Martha & Mary's....
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Tuesday, January 29, 2013
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Monday, January 28, 2013
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Saturday, January 26, 2013
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Friday, January 25, 2013
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Thursday, January 24, 2013
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Things You Should Know About A Special Needs Family
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Marci Scher
Delay Update from Wednesday, January 23 into Thursday, January 24
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Marci Scher
The Feelings of Helplessness by Daddy
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Marci Scher
Tuesday, January 22, 2013
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Monday, January 21, 2013
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January 20, 2013
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Two weeks....January 20, 2013
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Friday, January 18, 2013
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AND IT'S OUT....January 17, 2013
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Marci Scher
6:00 chest xray, January 16, 2013
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Marci Scher
Night and Today, Third Time is a Charm; January 16 or Day 11
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Another Bron and CT scan
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Marci Scher
Monday, January 14, 2013 - Day 9
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Marci Scher
Extubated and more; January 13, 2013
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Marci Scher
And we are out....January 11, 2013
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Marci Scher
Update, January 10, 2013
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Marci Scher
January 9, 2013
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Marci Scher
6:00 X-Ray, January 8, 2013
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PICU - January 7-8, 2013
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Marci Scher
Hopkins Day Two - January 7, 2013
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Marci Scher
Back At Hopkins January 6, 2013
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