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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Marci Scher
Beginning Of May
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Marci Scher
Double Digits - Happy Birthday
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All Good Things...Back to School
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We Are Back ...
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After 10 1/2 weeks
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Marci Scher
According to....
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A Visit With...
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Weekend Update
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As The Journey Ends - Brian
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Marci Scher
Tuesday, February 26th
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So How Are You Doing?
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Marci Scher
Weekend of February 23rd
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Friday, February 22, 2012
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World Rare Disease Day
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Marci Scher
President Weekend News
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First Few Day at Mt. Washington
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Marci Scher
In With the New, Out With the Old
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Transfer...
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Weekend Update
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10th floor, he has arrived
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Marci Scher
Holding Steady and Moving Forward
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What a Difference a Week Makes or Thereabouts (By Brian)
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Super Bowl Sunday.. February 3, 2013
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Ian and his 2 seconds of fame
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Trach Surgery and Mickey Tube
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Marci Scher
January 30 - 31, 2013
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Martha & Mary's....
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Marci Scher
Tuesday, January 29, 2013
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Marci Scher
Monday, January 28, 2013
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