Showing posts from February, 2015

Rare Disease Day 2015

According to Wikipenia, a rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population. There is no single, widely accepted definition for rare diseases. Some definitions rely solely on the number of people living with a disease, and other definitions include other factors, such as the existence of adequate treatments or the severity of the disease. In the United States, the Rare Disease Act of 2002 defines rare disease strictly according to prevalence (number of people living with a disease at a given moment), specifically "any disease or condition that affects less than 200,000 people in the United States, or about 1 in 1, 500 people. This definition is essentially like that of the Orphan Drug Act of 1983, a federal law that was written to encourage research into rare diseases and possible cures. The Global Genes Project estimates some 300 million people worldwide are affected by a rare disease.
One way to explain the diff…