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Showing posts with the label prolactin level

How are we doing and where are we going....

A few days ago I was on the phone with a dear friend. She began to tell me a story of being out with friends for dinner the night before. They asked her how Ian was…she said he was doing great…I said really you think so. Well she proceeded to explain to me how she saw it…compared to last year and when he first got sick in July of 2009, he is doing well. Back then he was not able to hold himself up on the sofa, not able to feed himself or give himself a drink from a cup, he could not hold a pencil/pen to write. As she put it, he was a wet noodle. He is now able to hold himself up and sit on the sofa, at times he is able to feed himself (sometimes we will feed him as it can take him hours to feed himself), he can pick up a cup and take a drink. One of his favorite pass times is to write... There are some other things he can do now that he was not able to do back then or when he was at his worse. If you look at him now compared to where he was before July 2009, then no he is not doing gr…

Getting Caught Up to Today

Ian started a new school the fall of 2009, he was walking fair, not wonderful. I had informed his teacher and therapists of his summer illness. Within the first few weeks, his teacher and physical therapist began counting how many times he was falling in a day…he was averaging 10 times a day. This became a safety issue for him. So they approached Brian and I regarding Ian starting to use a walker. It was not something we were thrilled with but we needed to give it a try. Ian did wonderful with the walker, “Wally”. Yes, Ian named it. He was speed racer with it, got around great. We even purchased one for home. Ian was doing well in school, seemed to be doing well over all. Then comes December 2009, Ian had another episode. We did not end up in the hospital this time, all of his symptoms were the same. We did go to the ER per his pediatrician. There was nothing they were able to do but the pediatrician wanted to make sure there was nothing else going on. Since Ian had a second episode i…