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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene

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Showing posts with the label Ian

Posted by Marci Scher August 30, 2020

4th Yahrzeit - 12 Elul - September 1 - September 15

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Posted by Marci Scher July 06, 2019

Twinless In Ohio - This Week - Twinless In Alabama

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Posted by Marci Scher April 28, 2019

In Honor Of Ian's 16th Birthday -- A Letter from Danny

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Posted by Marci Scher May 17, 2018

Does My Grief Make You Uncomfortable? Me Too.

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Posted by Marci Scher June 27, 2012

On The Boat....

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Posted by Marci Scher April 21, 2012

Happy 9th Birthday!!!!

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Posted by Marci Scher March 29, 2012

An Update...

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Marci Scher

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