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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts with the label Hospital
Posted by
Marci Scher
The Three Friends Every Caregiver Needs
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Posted by
Marci Scher
January 9, 2013
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Posted by
Marci Scher
PICU - January 7-8, 2013
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Posted by
Marci Scher
Hopkins Day Two - January 7, 2013
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Posted by
Marci Scher
Back At Hopkins January 6, 2013
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Posted by
Marci Scher
It's All In A Name
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Posted by
Marci Scher
Pushy Parents
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Posted by
Marci Scher
Getting Caught Up to Today
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Marci Scher
What a Week
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Marci Scher
An Exciting Day
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Posted by
Marci Scher
Our Journey Continues July 4th, 2009
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Posted by
Marci Scher
Our Journey Continues
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Posted by
Marci Scher
HOW IT STARTED
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