Showing posts with the label hope

inspiring HOPE

A Framework for the Difficult Decisions

Choosing how you want to live…and die -- National Hospice and Palliative Care Month

A Hard April....For Always

If You're Rare, Here's What I Want You To Remember On This Rare Disease Day

We Are the Sisterhood of Mothers With Medically Fragile Children

My Message as a Researcher to Anyone With a Rare or Undiagnosed Disease

Happy 9th Birthday!!!!