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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Tyler just told me he is actually in the paddleboat with Ian, but you can't see him because he's behind Spencer and the other counselor. :-)
ReplyDeleteThanks for Sharing this update, Marci. It looks like all of you are having a nice summer.
ReplyDeleteMarilyn Bensinger (Chai Lifeline)
Wow!! Summer looks fun!!
ReplyDeleteMiriam Foss
You put a huge smile on my face! Tell Ian "Hi" for me!
ReplyDeleteCarol Folkerts
Great to see! Summer camp is great for kids! I hope that everyone is well!
ReplyDeleteEllen Sachs Katz