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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
That's good news. I hope that's a little smile coming from Ian in that picture :)
ReplyDeleteYay Ian! Hugs and kisses from all of us!
ReplyDeleteHooray! Glad to hear it went well! Shannon A.
ReplyDeleteyay for Ian and family. Rose Kendig.
ReplyDeleteJulie Kaplan Yay!!!
ReplyDeleteCarrie Levin Weitzman Good news! Let me guess...bingo?
Marci Weinberg Scher Carrie Levin Weitzman nope extubated.
Emily Michelson Levin such great news!
Debi Gersh Van Camp Great news! Good luck!!
Amy Eisenberg Samay So glad the x-ray looked better!