We Are Back ...
In the PICU at Hopkins. Right now Ian is stable. We are waiting for rounds to figure out more. I will update later when I can.
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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
You are all in my thoughts and prayers! I hope Ian feels better soon to come home!
ReplyDeleteMitzi Agetstein Spiegelman Sorry Marci. Thinking about you guys.
ReplyDeleteNuchie Zirkind I am so sorry to hear it. what happened? :) I was just about to call you and ask you if you wanted us to put up a Mezuzah on Ian's bedroom at home to keep him and the family safe and protected at all times.
Helen Weisman Dagilis Oh no. Sorry to hear that. Hoping he gets to come back home soon. Thinking of all of you!
Mary Fab Thinking of you all.....
Sara Alima Ostrow Thinking of you all and sending lots of good thoughts to Ian and all of you.
Karen Krantweiss Nudelman I'm so sorry to hear this... Thinking and praying for his swift return home
Jessica Woolf Dorsey :( please let me know if you need anything!!!!!!!!
Heather Lev Dislike!! I hope he is ok. Thinking of all of you!! Xoxo
Audrey D Kline Sorry to hear it, Marci....hope you can get some good answers soon.
Lisa Goldberg Burgunder Oh no! Please let me know if I can do anything.
Rachel Schreiber Levitan Say it isn't so... ((Hugs))
Carrie Levin Weitzman Sending prayers!!!
Elena Lucini French Sorry my friend. Please let us know when you can.
Anne Polakoff King Oh no:((((
Robin Katcoff Not cool.
Lara Wynne Shit!! Please let us know if we can help in any way. Sending prayers and positive thoughts!
Tamara Jayne Flax I'm sorry. Oy!
Julie Goldman Egleston Marci! I'm so sorry to see this news! I hope everything is okay and Ian is back home soon!!!
Mary Shimkaveg I hope everything is Ok!
Kim Brandwin So sorry to hear this!
Stephanie Leibowitz Weinstein so sorry to hear this!! You all are in our thoughts and prayers!!!
Irina Brusilovsky Goldsmith Oh, Marci and Brian... I am so sorry to hear this!
Alicia Katznelson Broth Oh no! :(
Shelly Thompson I'm so sorry! I'm thinking of you!
Lisa Allentoff Hess I am so sorry to read this. Thoughts with all of you!
Annelise Sullivan Oh crap! I hope you can get some answers soon