Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Wear that you care....rare disease day is Friday, February 28th....Wear JEANS for GENES...take a photo showing your support for Ian and those out there with rare diseases....will make a blog entry of all them....my goal. At least 36, will you help me get there????
ReplyDeleteSherri Sibel Thomas We'll help you get there! We have 4 people for Friday!!
Karen Unger Frazier Jake Lyss and I are wearing ours proudly Friday!
Karen Lippy Maimone Kayleigh has a plan, even though it isn't jeans day for them yet!