Monday, August 18th, Day 5
The night was good. As for rounds this morning, his x-ray is stable no changes from yesterday which is good as they are making changes to all his settings. They have completely decuffed the trache and will change him back to his regular one tomorrow. As for his vent settings, all are back to his baseline execpt for his pressure support which they will decreased to 8 this afternoon and then to 6 in the morning. That will put him back at his baseline for everything and looking at possible discharge on Wednesday. They have changed his treatments to every 6 from every 4 working back to every 8.
Brian and I are back to our routine of 24 hours on 24 hours off, trying to give as much time to Becca when we are on our 24 hours off. Tonight we all video chatted, it was good to be able to laugh with each other. Time to get some rest as the morning will be here soon.
Susan Hillebrand Schwartzman do you need any school shopping that I can help with? glad to hear things are moving in right direction
ReplyDeleteMarci Weinberg Scher Thanks Susan Hillebrand Schwartzman, I think I am pretty much done. I have 2 more things to get...I will keep you in mind.
Gina Cohen That's my superhero! I'm so thrilled to hear the good news. I'm around if you need help or just want to talk.
Michelle Kampler Schwartz Hope to see you later. Do you need anything that I can bring from the outside world?
Tamara Jayne Flax Glad things are moving in the right direction!
Connie McElroy Lippenholz Thank you for sharing that Marci! Love the comparison to ALS so maybe we can all understand just a fraction of what life is like for Ian and any others suffering from these diseases. With all of the #ALSIceBucketChallenges zipping around Facebook, hopefully SMA will get some attention from this as well. Love & miss you all.