Happy 12th Birthday and How We Are Doing

First and for most, I want to wish my sweet girl and boy a very Happy 12th Birthday. Both of you have given mommy and daddy, along with so many others such joy over the years. No one knows what their life journey will be and what a journey it has been..one which we continue to treasure, dream and live....thank you both for giving us special days, each and every day.

We have been doing great since being home. Ian continues to heal well, resting, sitting in his chair for a few hours a day, even getting outside on the porch a little bit. He has been more comfortable in bed and not needed to be re-positioned as often as he used to. His surgical site looks wonderful and continues to show signs of healing every day. We could not be happier with the way he is doing. Becca is doing well and back into the swing of school, hard to believe it is the last quarter of 6th grade. Girl scouts is coming to a close soon as well and then before we know it, she will be off to all of her summer adventures. She has her moments of dealing with things, of having to grow up to fast and being more mature then a lot of kids her age...of being a typical 12 year old...we are working hard for her to be able to do more things outside of the house with friends...after it is all about being a kid when you can be one...isn't that what we all want for our kids. 

We are looking forward to what this year hold for us on our journey through life with PCH1A....the ups, the downs, the good, the bad, the pretty and the ugly....one day and step at a time.