Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
WE ARE HOME!
Stephanie Leibowitz Weinstein AWESOME news!!!!Jodi Postol Fantastic news!!! So glad my boyfriend is home!Emily Isaacs Dugan There's no place like home!!!Marlene Ettlin Yay ❗❗❗ so happy for all of you. 👍🏻👍🏻💜💜Heather Lev Yay!!Sallie Brovitz-Palmer AMAZING NEWS!!!!Annelise Sullivan Welcome home! It's going to be good to be in your own beds tonight.Gail Wasserman Lefko Great news! Welcome home!Samantha Gitli Schaefer Welcome home Ian! 🎉🎈🎉🎈Sherri Asher Awesome newsLynne Lichtig Terrific!!!!!Rebecca Goldstein So happy for all if you!Sara Alima Ostrow Yay!Heather Schmidt Young Yay!! Great news!Julie Onnembo YAY!!!!!Bryna Spector Bernstein Yipee! So happy to hear this!Erika Agetstein Buchdahl Joey missed you guysJennifer Paradise Baker amazing newsDanielle Houseal Glad to have you all home!Gina Cohen This is the best news ever! Welcome home Super Ian!!!Sandra Huller WOO-HOO!!!!!!!!Alyssa Faye Yay!!Helen Weisman Dagilis Welcome home!!Susan Weinberg Lewis There is no place like home! Can't wait to spend the evening with you, Ian!Audrey D Kline Hooray!!!Jamie Leboe Great news!Ina Sakolsky Leboe Wonderful!!!!Denise Zemlak Beveridge Yay Team Ian all the way!!!👍💪Arlene Brown Stein yay!!!!!!Harry Blacker Yeeee Haaaa. Glad to hear he is home!!!!!Adina Levitan Woot woot! Pedis for all! So happy you guys are home!!
Stephanie Leibowitz Weinstein AWESOME news!!!!
ReplyDeleteJodi Postol Fantastic news!!! So glad my boyfriend is home!
Emily Isaacs Dugan There's no place like home!!!
Marlene Ettlin Yay ❗❗❗ so happy for all of you. 👍🏻👍🏻💜💜
Heather Lev Yay!!
Sallie Brovitz-Palmer AMAZING NEWS!!!!
Annelise Sullivan Welcome home! It's going to be good to be in your own beds tonight.
Gail Wasserman Lefko Great news! Welcome home!
Samantha Gitli Schaefer Welcome home Ian! 🎉🎈🎉🎈
Sherri Asher Awesome news
Lynne Lichtig Terrific!!!!!
Rebecca Goldstein So happy for all if you!
Sara Alima Ostrow Yay!
Heather Schmidt Young Yay!! Great news!
Julie Onnembo YAY!!!!!
Bryna Spector Bernstein Yipee! So happy to hear this!
Erika Agetstein Buchdahl Joey missed you guys
Jennifer Paradise Baker amazing news
Danielle Houseal Glad to have you all home!
Gina Cohen This is the best news ever! Welcome home Super Ian!!!
Sandra Huller WOO-HOO!!!!!!!!
Alyssa Faye Yay!!
Helen Weisman Dagilis Welcome home!!
Susan Weinberg Lewis There is no place like home! Can't wait to spend the evening with you, Ian!
Audrey D Kline Hooray!!!
Jamie Leboe Great news!
Ina Sakolsky Leboe Wonderful!!!!
Denise Zemlak Beveridge Yay Team Ian all the way!!!👍💪
Arlene Brown Stein yay!!!!!!
Harry Blacker Yeeee Haaaa. Glad to hear he is home!!!!!
Adina Levitan Woot woot! Pedis for all! So happy you guys are home!!