Search This Blog
Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
Posts
Posted by
Marci Scher
Two weeks....January 20, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Friday, January 18, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
AND IT'S OUT....January 17, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
6:00 chest xray, January 16, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
Night and Today, Third Time is a Charm; January 16 or Day 11
- Get link
- X
- Other Apps
Posted by
Marci Scher
Another Bron and CT scan
- Get link
- X
- Other Apps
Posted by
Marci Scher
Monday, January 14, 2013 - Day 9
- Get link
- X
- Other Apps
Posted by
Marci Scher
Extubated and more; January 13, 2013
- Get link
- X
- Other Apps
Posted by
Marci Scher
And we are out....January 11, 2013
- Get link
- X
- Other Apps