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SAVE THE DATE - GILCHRIST KIDS - FACEBOOK LIVE

If You're Rare, Here's What I Want You To Remember On This Rare Disease Day

Legos for a Child With a Hole in His Heart

Imagine Getting...

A Tribute on the PCH Warriors and Advocates Facebook Page

When Someone You Love Dies, There's No Such Thing As Moving On

JScreen - Pontocerebellar Hypoplasia Type 1A

We Are the Sisterhood of Mothers With Medically Fragile Children

My Message as a Researcher to Anyone With a Rare or Undiagnosed Disease