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Our families journey with a life threatening neuro-muscular disease, from searching for a diagnosis to end of life challenges to the grief roller-coaster. PCH1A, a altercation of the VRK1 gene
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Showing posts from 2013
Posted by
Marci Scher
As Thanksgiving and Hanukkah Approach
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Posted by
Marci Scher
All Is Going Well
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Marci Scher
How many times do you get to bring your baby home from the hospital?
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Marci Scher
Hopkins - Day 9
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Marci Scher
Hopkins - Day 8
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Marci Scher
Hopkins - Day 7
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Marci Scher
Hopkins - Day 6
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Marci Scher
Hopkins - Day 5
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Marci Scher
Hopkins - Day 4
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Marci Scher
Hopkins - Day 3
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Marci Scher
Hopkins - Day 2
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Marci Scher
Hopkins... Day 1
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Marci Scher
Series 5 of It's Just About Life
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Marci Scher
Spending time together
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Marci Scher
We Are Published....
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Posted by
Marci Scher
Saturday/Sunday October 19th/20th
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Posted by
Marci Scher
Still doing well...
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Marci Scher
We're back...10 North that is
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Marci Scher
It's Just About Life
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Marci Scher
The Invisible String ... Love
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Posted by
Marci Scher
Week of Follow-Up MD apppointments
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Posted by
Marci Scher
Treasure Yesterday, Dream of Tomorrow, but Live for Today
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Marci Scher
Gilchrist Kids
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Marci Scher
Out of My Mind ...2
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Marci Scher
Thirty-One....Thank You Mitzi
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Marci Scher
A Magical Night Full of Memories
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Marci Scher
Camp Simcha Special
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Marci Scher
A Photo Says What?
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Marci Scher
If You Would Have Told Us....
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Posted by
Marci Scher
We're really doing it
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Marci Scher
A Much Needed Family Weekend
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Posted by
Marci Scher
We Made It....
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Posted by
Marci Scher
A Year Later...
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Marci Scher
A Different Kind of Summer
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Posted by
Marci Scher
Faces of SMA
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Marci Scher
Beginning Of May
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Marci Scher
Double Digits - Happy Birthday
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Marci Scher
All Good Things...Back to School
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